Well I’ve just had the most horrible few days. I’ve had chronic constipation – caused, most probably, by the painkillers I was on for tendonitis 🙄. Don’t worry, I’ll spare you the details, but suffice to say I think it’s one of the most painful and uncomfortable things I’ve ever experienced and I’ve been bloody miserable. It certainly proved that I’m not especially brave – I don’t tolerate pain well and if you’d heard my moans you’d be in no doubt. Sue said anyone passing would have thought I was giving birth!
Luckily, after some intervention, it’s finally passed now (again, scuse the pun). As I said to the carers who were here at the time “I feel like a new woman. Do you know any?” They – and Sue who was in the room – all laughed and declared me officially back. 😀
All the carers who visited me during this time were absolutely amazing, so kind and caring and offered fantastic help and advice. I’m so grateful to them. It takes a very special kind of person to be so caring and to deal with all sorts of horrible stuff on a daily basis for so little pay. They are the heroes of our society.
So I’ve been in bed since Sunday, and in that time that watched a lot of TV, much of which has been about the coronavirus of course. I’m not stressing about it but it does concern me of course because it could well kill me due of the effect MND has on breathing. I’m not going out at the moment but we have plenty of people coming here. Still, as I say, I’m not overly worrying myself – there’s no point.
I’m keen to get downstairs to see all the work that’s been done. We’ve had new front and back doors installed this week and work is progressing on the wet room and the garden – or should that be gardens, as we’re now having the front garden done too. Very exciting. But, as I’m now having the opposite problem to constipation, I’m better off staying in bed and out of the way! 😬
Still, I’m missing spending time with Sue. She has been keeping the ball rolling on everything that’s going on, and looking after a very moany and demanding wife – she’s exhausted, bless her.
She’s worried I’m becoming insular and withdrawing from life in general, and I have to concede there might be an element of truth in that – I can feel myself becoming very cautious of any change (ironic, for a former change management professional). We had planned to go out somewhere this week and deep down I’m a bit relieved we now can’t. There, I’ve admitted the problem so hopefully now I can address it. I don’t think Sue will give me any choice anyway. She says that when I’m downstairs and in my wheelchair or on the sofa she sees me, not the MND, but when I’m in bed it’s harder to see past it. There’s my motivation if ever I needed it. All being well, I’ll get up later today.
Time for the rest of me to get moving now! 😉😆